Making a LeDeR referral

How to make a referral

Benjamin informs Louise that the hospital had failed to make a referral to LeDeR for the case to be reviewed following Joseph’s death. Louise says that this is an important thing for families to ensure is done, because all deaths of a person with a learning disability following NHS treatment must be reported to LeDeR. This is to help create data on these deaths to better understand what the causes are and what can be done to prevent them.

Reports for a LeDeR review are made here.  

The referral asks for:

• The referrer’s relationship to the person who died 

• Whether they had a learning disability and/or autism 

• Their age when they died 

• Whether they came into contact with the criminal justice system or had any mental health restrictions at the time of their death or in the 5 years leading up to their death  

• Whether the person opted-out from having their health records being used for research and planning 

• Their name, date of birth, date of death, sex at birth and whether their gender was the same as their birth sex 

• Their usual address before they died  

• Where they died (e.g type of hospital, their home, a hospice, residential home) and whether this was their usual place of residence 

• Whether their death has been registered 

• If the referrer believes the death is related to COVID-19 

• Whether anyone else has been notified about the death  

• The concerns the referrer had about their death such as: 

• Abuse 

• Neglect or acts of ommission

• Coordination of care 

• Diagnosis  

• Timeliness of treatment 

• Their ethnic group, religion, and relationship (e.g single, married) 

• Their NHS number and registered GP surgery  

• Details of their next of kin/someone who knew them well 

• Referrer’s details